3 weeks

I can't believe that this sweet boy has been with us for 3 weeks! He is so cute and such a happy boy. He brings such joy into our lives!
Well this week has been some what rough. Tyler does not like his formula at all and tends to spit out quite a bit of what he drinks. He has been throwing up almost every morning since he started the new formula and medicine. At first he would throw up right after he took his medicine, so Dr. Warnock said to half his dose and that worked. Eben though he has been throwing up he has still gained 11 ounces and grown a quarter inch since last week! Im going to have to put the newborn outfits away soon.
We appreciate all the prayers sent our way. Things may be rough but I KNOW things will get better.
My family is so blessed in so many ways. I am blessed to be a stay at home mom. I love being able to spend the day with Tyler. We are blessed that Tylers case is treatable. We are blessed with the gospel in our lives and to know that our little family will be together forever.

P.s. For those of you who don't have Facebook here is some of Tylers newborn pictures.

Tylers Appointment at Primary Children's

Well, we met with a geneticist at Primary Children's this morning. She explained a lot to us about VLCAD and frankly, most of it went over my head. Luckily my mom came along (thanks Mom! Love you!) and took notes and Dr. Warnock gave us paper work. Ill explain as much as I can and what I miss I will include in another post.
We all have an enzyme that cuts the carbon chain of the fat into groups of two and then we can make energy out of those groups of two. Well, Tyler's enzyme doesn't do this correctly. And it's only with certain carbon chains-mainly 14 long chain. So this means that he can't go long periods of time without eating. The rule of thumb is for every pound he can go a half hour without eating, so right now he can go 3 1/2 hours without eating. Dr. Warnock gave us medicine he needs to take daily and he is on a special formula that has a certain oil in it for him.
When Tyler gets older he will live a perfectly normal life as long as he follows the rules. The only restriction will be he can't play any sports that have a long endurance-cross country, triathalons and what not. He can play football, soccer, baseball, basketball. He will just need to keep his carbs up.
Dr. Warnock informed us if he gets sick and can't keep food in, he will be hospitalized. We will just need to be careful over the next few months with the flu, cold and whooping cough. We will be back up in 4 months when we start introducing food to him.
We are so blessed to have such amazing family and friends who supports us and prays for us. We love and appreciate you all.

VLCAD

Last Thursday I got a call from Tyler's pediatrician, Dr. Kaddu, asking me to bring Tyler in for some testing. His PKU came back abnormal and they needed to run it again. My mom drove us to the hospital and they took his blood, did a heel prick and took a urine sample. Since then Riley and I have been axiously awaiting for the call from Dr. Kaddu and praying he doesn't have PKU.
  Well yesterday we received that call and instead of PKU, they think Tyler has VLCAD. VLCAD stands for Very Long Chain Acyl-Coa Dehydrogenase Disorder. What it means is that Tyler can't break down certain fatty acids and make it into energy. From what we have read this is a genetic disease where both parents have to have the recessive gene. This is a life long disease and treatment is diet and supplement oils. In order to learn more and to be certain this is what Tyler has Riley and I are taking Tyler to Primary Childrens for more testing. Please keep Tyler in your prayers. Thank you!

On a side note we got his newborns done and they are adorable!

Best Day of Our Lives

  Well, I am sure you have heard Tyler decided to join our little family on Friday. I figured I'd share the story of how he joined us.

  Thursday morning I got up swept, mopped amd vacuumed my floors, did almost all our laundry and then showered and got ready for the day. My best friend Dallis came over and we watched T.V and chatted until noon. I got up to make lunch and I started having contractions. I pushed through the pain and then went to lay down to see if I could get them to stop. Well two hours later(and a little coaxing to call Riley from Dallis) Riley and I headed to Dr. Chalmers and Otts office.

When we got there I told them I was early for my appointment but I really needed to see Dr. Chalmers because I was in a lot of pain. After 45 minutes I finally told them I thought I was in labor. They got me back there and Dr. Chalmers said I definitely was in labor and was dilated to a 5. He sent us over to the hospital and I was so excited/nervous I was on the verge of tears and couldn't call anyone to tell them! Lucky for me, Riley was all over that. We got checked in at 4:45, I changed into a hospital gown and my family came within 30 minutes. Thus the waiting started.

  Within an hour I was dilated to a 7+ and they needed to break my water. I decided to get an epidural and shortly after I received the epidural my contractions slowed down and almost stop. They gave me some Petosin and got the contractions moving along. By this time, my in laws, my grandma and all of my aunts had shown up to the hospital. It was a party in the delivery room! After 4 hours of waiting, lots of different positions to help him to descend and two cups of ice chips later, it was time to push. I only pushed for 30 minutes amd Tyler was here! When they put him on my tummy I couldn't believe how beautiful he was and how strongly I felt the spirit. How anyone doesn't believe in God after experiencing child birth is beyond me..

  During all of this, Riley was so amazing. He was holding my hand, rubbing my shoulders, feeding me ice chips and telling me I was doing so good. I was so grateful for his support. He got to cut Tylers umbilical cord and was up on his feet in two seconds when Tyler cried that night.

  I want to take a minute and thank everyone who came to support Riley and I. Thank you to my amazing aunts and to my awesome grandma for all the supportive words and for keeping us company while waiting for Tyler to come. Thank you to my amazing sis Kloie. She stuck by my side through it all and even fed me ice chips. Thank you to my AMAZING parents. Mom, I am so grateful you were there to help me and to talk me through this. Dad and Kody thanks for keeping us laughing during the whole thing!

  This little boy is such a little angel and we are excited for everyone to meet him!

Drs Appointment

Thursday Riley and I went to my appointment.  Dr. Ott said I'm measuring right on and he is head down. He also told me I am dialated to a 3! Dr. Ott said that was a bug change fron two weeks ago! That means he could be here anytime. It could be tomorrow or 3 weeks from now. We are getting so close to having this little guy join us! We are very excited!

My next appointment is next Thursday! We will see if I make it that far!